What's This All About?

My mother (who is nearly 80) has mixed type vascular dementia and Alzheimer's. Her 'treatment' since she first began to show symptoms now over 18 months ago has been a catalogue of stereotypes, unprofessionalism and disinterest. It has opened our eyes to the collective inability to treat dementia, and the mostly elderly group suffering from it, with any real concern. This blog is an attempt to provide a space to bring together both our experience and key points and links to information and advice for others in a similar position. We hope it will ensure that this collective 'not seeing' of people with dementia and those caring for them in all senses is brought into the open. You can also join See The Person on Facebook

Friday, 2 April 2010

Dementia Tax

The Alzheimer's Society position paper on charging for care relating to dementia http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=1069 is very clear about the financial impact on elderly people with dementia.


"Charging for care affects people with dementia and their carers more than older people with other medical conditions and amounts to a 'dementia tax'. In addition, people with dementia and their carers are paying for services that often do not deliver good quality care."

Dementia is a physical disease of the brain, yet it is not regarded systematically as a health issue and therefore the responsibility of the NHS. Rather it is treated as a 'sign of ageing' and therefore as a social care issue with needs to be met by Social Services and so subject to means testing.

This is not just about who pays, it is also about a system designed to relegate and minimise the real needs of people with dementia - to create as the Society says a double layer of discrimination. This sees people paying for their care stemming from their illness and not having access to relevant care anyway - apart from in a few englightened, positive (and expensive) nursing homes specialising in dementia.

The lucky few can pay for the care they require 'at the point of need' - the majority, despite having through National Insurance contributions paid for a National Health Service, are denied health care 'free at the point of delivery' and are left to pay for their own care.

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